Baby J. Day 5

Chilling out in the blue light- today she was very happy and calm on her tummy. (sorry I know it's not a very good pic)

Not a lot to update today.   Today though she had an X-ray that came back looking better than it has.  Poor Baby J has had a lot of bleeding in her lungs possibly caused by a PDA which they can't really do much about.  However when they were suctioning her today she did have less blood coming up with it.

Also her blood gases remain are better than yesterday which is awesome.   Her blood gas results and oxygen needs are part of what goes into deciding when to take her off the ventilator she is on now and taking her down a notch.   This weekend they will probably start her on a steroid treatment to help speed up her lungs.  Yes steroids come with possible long term effects (many of which she is already at risk for), but they out way the risks of continuing to be on this ventilator.    They really wanted to wait till she was about 2 weeks old which will be on Sunday.

The big movement forward is that today the doctor moved her feedings from every 12 hours to every 6 hrs.  She is only getting 2ml a feeding so it's not much - most of her nutrition is coming from liquid stuff.   That should help her grow even more.

I stayed at the hospital most of today but had to come back to the Wichita area (baby J is 2hrs away from me.)  I do feel guilty but I also know that it's going to happen some and it happens with all babies.    I am going back on Sunday but have things happening around here.   Hopefully I will have awesome or great news to report on Sunday evening.

Thanks for keeping up to date on us and sharing our story.   Hopefully now that she is growing and getting older we will start to see some improvements.  She's a very sick little girl as the doctor said so she has a ways to go.